SOS

Any parent worries how their offspring will cope in an emergency. We try to prepare them as best we can, but short of covering ourselves in tomato sauce and lying …

Cinders

Like many girls of 17, The Rose would LOVE a boyfriend. For a while I was selfishly happy she didn’t have one. It meant I could keep her safe and at …

Bring me sunshine

The other day I was reflecting on how much has changed in the two years since The Rose got her diagnosis. Of course nothing much has changed at all for …

Little Brother

It’s a short blog today. I’m rushing home because it is The Brother’s birthday. The Rose has made a card, wrapped a present and we are cooking a birthday tea …

Stitched Up

Sometimes I am a truly awful person and a really rubbish, stupid Mum. This isn’t just my opinion of course, it is widely shared by my whole family and beyond …

I wanna hold your hand

Whenever we go out to places which are noisy or crowded – she holds my hand. And she keeps hold of it until she’s surer of whatever we are doing …

We’ve got it covered

  Watching in awe as The Rose grows up and unfurls beautifully, but what scares me most is her behaviour with boys. One day she’s going to get into THAT …

On a different note

The Rose finds huge relief in writing us notes. In them she can order her thoughts and communicate her side of things  – without having to deal with our reactions which just complicates …