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Numbers
The last blog post (Money can’t buy me love) described an evening of virtual spending, where The Rose sent texts donating to good causes but with no regard for how …
Money can’t buy me love
Money. It makes the world go around. It greases the wheels of commerce. It’s what we work to earn, to live. But in The Rose’s world it’s a confusing, bewildering …
Proud
This week The Rose completed her first year of college. Like the rest of her large year group, she is with people who all failed to achieve any recognised paper …
You Got A Friend
Friends! They are the Holy Grail for most of us, whatever the scale of our social dys/function. The mates who make you laugh till you cry. The ones who make you …
Relax
I write this, hoping it will be read in the spirit I mean it to be read in – i.e. tolerance, understanding and a bit of a laugh. The Rose …
SOS
Any parent worries how their offspring will cope in an emergency. We try to prepare them as best we can, but short of covering ourselves in tomato sauce and lying …
Cinders
Like many girls of 17, The Rose would LOVE a boyfriend. For a while I was selfishly happy she didn’t have one. It meant I could keep her safe and at …
Bring me sunshine
The other day I was reflecting on how much has changed in the two years since The Rose got her diagnosis. Of course nothing much has changed at all for …
Stitched Up
Sometimes I am a truly awful person and a really rubbish, stupid Mum. This isn’t just my opinion of course, it is widely shared by my whole family and beyond …
I wanna hold your hand
Whenever we go out to places which are noisy or crowded – she holds my hand. And she keeps hold of it until she’s surer of whatever we are doing …
The Name Of The Rose Blog 